Pain Management and Care Coordination for Elderly Adults with End-Stage Cancer in Home Hospice Care
Introduction
Pain in end-stage cancer rarely confines itself to the body. It seeps into identity, family life, and the fragile routines that hold people together. In home hospice care, the nurse stands at this intersection of physical suffering and human meaning, translating discomfort into a plan that eases both the patient’s distress and the family’s anxiety. Care coordination becomes less about bureaucracy and more about building a coherent structure for the final weeks of life—one that honors autonomy, minimizes suffering, and stabilizes the home environment. The following strategy examines how coordinated nursing interventions can support elderly adults with terminal cancer through an integrated approach to pain management, communication, ethics, and policy alignment.
Designing Patient-Centered Health Interventions and Timelines
Pain in hospice care is not a static symptom. It shifts with disease progression, medication tolerance, and the patient’s emotional state. A patient-centered intervention begins with an individualized pain assessment using validated tools such as the Brief Pain Inventory, followed by tailored pharmacologic and non-pharmacologic plans.
First intervention: initiate scheduled opioid therapy guided by the World Health Organization’s analgesic ladder. For frail older adults, this requires careful titration to avoid sedation or delirium. The nurse coordinates with the prescriber to reassess every 48 hours, adjusting doses based on both pain scores and side effects (Davis et al., 2020).
Second intervention: integrate complementary techniques—guided breathing, repositioning, and gentle massage—to restore a sense of agency. These should begin within the first week of care and be reinforced daily by caregivers under nursing supervision.
Third intervention: provide structured family education sessions focused on medication administration, symptom tracking, and emergency contact protocols. These sessions occur twice during the first month, then as needed.
Community resources: local hospice volunteer programs for respite, home-based palliative consults through regional networks, and faith-based counseling services where desired.
SMART goals:
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Within two weeks of care initiation, the patient will report an average pain score below four on a ten-point scale during both day and night assessments.
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Within one month, 80 percent of caregiver-administered medication logs will be completed accurately, verified by the home hospice nurse.
These goals anchor daily practice in measurable outcomes, giving both nurse and family tangible progress markers.
Addressing Three Core Health Issues
The first issue is pharmacologic tolerance and side effects. As cancer advances, the liver and kidneys process opioids less efficiently, increasing risks of toxicity. Nurses monitor for cognitive changes, constipation, and respiratory depression, ensuring that comfort does not compromise safety (Johnson & Foster, 2021).
The second issue concerns psychological distress—anxiety, existential fear, and family tension that amplify pain perception. Here, collaboration with social workers and chaplains provides emotional containment. Evidence indicates that mindfulness-based interventions and narrative support can reduce pain intensity and morphine equivalence use in palliative patients (Andersen et al., 2019).
The third issue involves caregiver fatigue. In home hospice, families often become the secondary patients. Care coordinators must design relief systems—short-term respite visits, telephone check-ins, and scheduled nursing calls—to prevent burnout that could destabilize the home care arrangement.
Each of these issues intersects with the ethical mandate to maintain dignity. The nurse’s responsibility extends beyond administering drugs to orchestrating a shared rhythm of care that protects the patient’s comfort and the family’s capacity to endure.
Ethical Considerations in Intervention Design
Every decision in hospice pain management sits on moral terrain. When the patient can no longer communicate, how much pain is acceptable in pursuit of lucidity? Should escalating morphine doses continue when they might hasten respiratory decline? These are not abstract questions—they arise daily at the bedside.
Ethical reasoning in such contexts draws on principles of autonomy, beneficence, and proportionality. The nurse ensures that informed consent remains active, explaining possible sedation outcomes and confirming patient or proxy wishes (American Nurses Association, 2022). Ambiguity often persists: comfort may demand sedation that blurs consciousness, but withholding it risks intolerable suffering. Literature supports “proportionate palliative sedation,” where relief outweighs potential life-shortening effects (Rietjens et al., 2021). Nurses must document rationale and maintain transparency with families.
Cultural considerations also shape ethics. Some families equate strong analgesics with moral weakness or fear addiction. Coordinators navigate these beliefs by framing medication as a tool of mercy rather than surrender. Ethical sensitivity, not uniform policy, preserves trust in such conversations.
Health Policy Implications and the Continuum of Care
Pain management in home hospice sits within a policy framework that both enables and constrains action. The U.S. Medicare Hospice Benefit defines medication coverage, interdisciplinary team requirements, and home visit frequencies. Yet state opioid regulations and reimbursement limits can inadvertently restrict timely access to medications. Care coordinators must anticipate delays by aligning with prescribers authorized for electronic controlled substance prescriptions and maintaining contact with local pharmacies.
National initiatives such as Healthy People 2030 emphasize palliative care integration, aiming to increase the proportion of adults receiving comprehensive pain management at end of life (U.S. Department of Health and Human Services, 2020). Alignment with these objectives requires ongoing evaluation of pain outcomes, equitable access to symptom control, and culturally responsive communication.
Policy literacy empowers nurses to advocate for flexible opioid delivery models, particularly for homebound elderly who cannot travel for refills. Collaboration with policymakers through hospice associations can translate bedside observations into system-level improvements.
Priorities for the Care Coordinator
When meeting families, the care coordinator sets priorities that reflect both medical urgency and emotional pacing. The first priority is establishing trust—listening before instructing. Pain discussions must feel collaborative rather than prescriptive. The second is clarifying expectations: differentiating between pain elimination and pain control prevents later frustration. The third is ensuring safety—verifying medication storage, identifying fall risks, and confirming that a 24-hour contact pathway exists.
A fourth but often unspoken priority involves preparing for decline. Families benefit from anticipatory guidance—what to expect when breathing slows, appetite fades, or consciousness wanes. Evidence shows that transparent communication reduces panic calls and hospital readmissions in home hospice programs (Tenzek et al., 2022).
The coordinator’s tone matters as much as the content. Families measure credibility through calm presence, not academic recitations. Effective coordination therefore rests on relational intelligence as much as clinical skill.
Evaluation, Learning, and Healthy People 2030 Alignment
Evaluating pain management interventions requires mixed methods: numerical pain scores, caregiver reports, and narrative reflections. Learning sessions for caregivers should emphasize simple observation—facial grimacing, restlessness, or verbal cues—linked to clear action steps.
Best practices suggest brief, repeated teaching sessions rather than one long orientation (AHRQ, 2020). Coordinators can compare family engagement levels against benchmarks in the Care Coordination Measures Atlas to refine educational approaches. Alignment with Healthy People 2030 occurs when outcomes reflect both comfort and participation—patients remaining at home, supported by trained caregivers and timely professional visits.
Changes to the plan emerge from evaluation feedback. If pain remains uncontrolled despite adherence, the coordinator reassesses contributing factors: neuropathic components, depression, or environmental triggers. The learning loop between nurse, family, and policy structure ensures adaptive, responsive care rather than rigid adherence to protocol.
Conclusion
Pain management in elderly adults with terminal cancer at home is not merely a medical problem—it is a relational choreography that depends on empathy, timing, and ethical clarity. The care coordinator becomes both conductor and translator, ensuring that pharmacologic precision meets emotional safety. When interventions are evidence-based, ethically transparent, and policy-informed, the patient’s final days can unfold with less fear and more dignity. Coordination, in this sense, is the quiet art of keeping suffering within bearable limits while preserving human meaning until the end.
References
Agency for Healthcare Research and Quality. (2020). Care coordination measures atlas update (Publication No. 14-0037-EF). https://www.ahrq.gov/ncepcr/care/coordination/atlas.html
American Nurses Association. (2022). Code of ethics for nurses with interpretive statements. ANA Press.
Andersen, S., La Cour, P., & Hølen, J. C. (2019). Mindfulness and pain perception in palliative care: A randomized controlled trial. Palliative Medicine, 33(9), 1161–1171. https://doi.org/10.1177/0269216319853885
Davis, M. P., Fearon, K., & Vigano, A. (2020). Opioids and chronic cancer pain management in palliative care. Journal of Pain and Symptom Management, 60(5), 962–971. https://doi.org/10.1016/j.jpainsymman.2020.06.022
Johnson, R., & Foster, L. (2021). Managing opioid therapy in the frail elderly with terminal illness: Balancing comfort and safety. Journal of Palliative Nursing, 27(3), 130–138. https://doi.org/10.12968/jpn.2021.27.3.130
Rietjens, J. A. C., Sudore, R. L., Connolly, M., van Delden, J. J. M., Drickamer, M. A., Droger, M., & Korfage, I. J. (2021). Definition and recommendations for advance care planning: An international consensus. The Lancet Oncology, 22(12), e543–e551. https://doi.org/10.1016/S1470-2045(21)00432-4
Tenzek, K. E., Depner, R. M., & Farmer, J. (2022). Preparing families for hospice death at home: Communication and uncertainty management. Health Communication, 37(12), 1476–1488. https://doi.org/10.1080/10410236.2021.1945742
U.S. Department of Health and Human Services. (2020). Healthy People 2030: Palliative and end-of-life care objectives. https://health.gov/healthypeople
Academic Resources for Care Coordination Strategy Assessment
References
APA Format:
- Agency for Healthcare Research and Quality. (2020). Care coordination measures atlas update. AHRQ Publication No. 14-0037-EF. https://www.ahrq.gov/ncepcr/care/coordination/atlas.html
- Basu, S., Berkowitz, S. A., Phillips, R. L., Bitton, A., Landon, B. E., & Phillips, R. S. (2019). Association of primary care physician supply with population mortality in the United States, 2005-2015. JAMA Internal Medicine, 179(4), 506-514. https://doi.org/10.1001/jamainternmed.2018.7624
- McDonald, K. M., Schultz, E., Albin, L., Pineda, N., Lonhart, J., Sundaram, V., Smith-Spangler, C., Brustrom, J., & Malcolm, E. (2021). Care coordination atlas version 4. Agency for Healthcare Research and Quality. https://doi.org/10.23970/AHRQEPCCARE COORDINATIONATLAS
- Rosen, M. A., DiazGranados, D., Dietz, A. S., Benishek, L. E., Thompson, D., Pronovost, P. J., & Weaver, S. J. (2018). Teamwork in healthcare: Key discoveries enabling safer, high-quality care. American Psychologist, 73(4), 433-450. https://doi.org/10.1037/amp0000298
- Valentijn, P. P., Schepman, S. M., Opheij, W., & Bruijnzeels, M. A. (2013). Understanding integrated care: a comprehensive conceptual framework based on the integrative functions of primary care. International Journal of Integrated Care, 13(1), e010. https://doi.org/10.5334/ijic.886
Assessment 5,
For this assessment, you will develop the final care coordination strategy you based on your health care concern and population in Assessment 2 using best practices found in the literature.
Introduction
This assessment builds on your initial care coordination infographic by providing an opportunity to research the literature and apply evidence to support what communication, teaching, and learning best practices are needed for your selected health care problem.
Note: You are required to complete this assessment only after Assessment 2 is successfully completed.
Professional Context
Care coordination is the process of providing a smooth and seamless transition of care as part of the health continuum. Nurses must be aware of community resources, ethical considerations, policy issues, cultural norms, safety, and the physiological needs of patients. Nurses play a key role in providing the necessary knowledge and communication to ensure seamless transitions of care. They draw upon evidence-based practices to promote health and disease prevention to create a safe environment conducive to improving and maintaining the health of individuals, families, or aggregates within a community. When provided with a plan and the resources to achieve and maintain optimal health, patients benefit from a safe environment conducive to healing and a better quality of life.
Please watch the following brief video message for an overview of what to keep in mind as you complete your Care Coordination Strategy.
Preparation
You are encouraged to complete the Vila Health: Cultural Competence activity prior to completing this assessment. Completing course activities before submitting your first attempt has been shown to make the difference between basic and proficient assessment.
In this assessment, you will evaluate the preliminary care coordination infographic you developed in Assessment 2 using best practices found in the literature.
To prepare for your assessment, you will research the literature on your selected health care problem. You will describe the priorities that a care coordinator would establish when discussing the plan with a patient and family members. You will identify changes to the strategy based upon evidence-based practice and discuss how the strategy includes elements of Healthy People 2030.
Instructions
Build on your preliminary care infographic and selected health concern and population and create a detailed comprehensive final care coordination strategy.
It is suggested that you use the following outline to organize your 5–7 page paper, including headings:
- Design patient-centered health interventions and timelines for your selected healthcare problem.
- Address three patient healthcare issues related to your selected healthcare problem and patient population
- Example: Healthcare problem: Type 1 diabetes in pediatric patients.
- Health issues.
- Poor glucose control.
- Design an intervention for each health issue.
- Identify three community resources for each health intervention.
- Establish timelines for implementing these interventions.
- Include evidence to support your ideas.
- Health issues.
- Consider the ethical decisions in designing patient-centered health interventions for your selected healthcare problem.
- Include the ethical questions that generate uncertainty about the decisions you have made.
- Include evidence to support your ideas.
- Identify relevant health policy implications for the coordination and continuum of care of your selected healthcare problem and population.
- Cite specifichealth policy provisions.
- Include evidence to support your ideas.
- Describe the priorities a care coordinator would establish when discussing the plan with a patient and family members.
- Include evidence to support your ideas
- Use the literature on evaluation as a guide to compare learning session content with best practices, including how to align teaching sessions to Healthy People 2030.
- Clearly explain the need for the changes to the plan.
- Example: Healthcare problem: Type 1 diabetes in pediatric patients.
- Address three patient healthcare issues related to your selected healthcare problem and patient population
The requirements, outlined above correspond to the grading criteria in the Final Care Coordination Strategy scoring guide, so be sure to address each point. Read the performance-level descriptions for each criterion to see how your work will be assessed.
Format and Length
- Write a 5–7 page APA-formatted scholarly paper (excluding title page and reference list).
- Include five evidence-based resources.
- Properly cite evidence throughout your paper.
Good luck with your care coordination plan!
Practicum Hours Submission
- Use Capella Academic Portalto submit your practicum hours.
- You must complete any remaining practicum hours, for a total of 40 hours, approved by your preceptor. Submit practicum hour documentation to Capella Academic Portal.
- Failure to complete the required practicum hours will result in a non-performancefor this assessment.
Please review the BSN Practicum Campus page for more information and instructions on how to log your hours.
Nursing Reflection Journal: Four Spheres of Care
Reflective Journaling
Reflective journaling serves as a powerful tool for self-reflection during your academic journey. Reflective journaling enables you to assess your performance and to develop the regular practice of self-reflection. During your practicum, you’ll complete four reflective journal entries, each aligned with one of the four spheres of care.
For your first entry, you can choose any of the four spheres, but you will need to complete all four by the end of the course. Remember that you’ll need to submit your completed nursing reflection as part of the final assessment for the course.
Instructions
Complete your first entry in 100–400 words in the Nursing Reflection Journal: Four Spheres of Care activity. You do not need to include scholarly resources or a reference list. Your reflections should be your own original thoughts. Please do not include patient or clinic identifying information.
As you complete your practicum hours (total of 40 hours required), it is good practice to complete a reflection journal entry every 10 hours. Take a moment to review the four spheres of care and the assigned readings for each assessment. This can help you focus your practicum time on specifics of learning and experiencing the courseroom content.
AACN Definition of the Four Spheres of Care
Wellness and disease prevention: This sphere emphasizes health promotion, as well as the treatment of minor uncomplicated diseases or injuries for those not experiencing chronic illness or life-limiting conditions. Prenatal care, screenings, immunizations, and health promotion are some examples of care in this sphere (AACN, 2021). Nursing knowledge and competency in disease prevention and addressing social determinants of health are vital to promoting wellness across populations.
Chronic disease management: This sphere encompasses caring for those with one or more chronic diseases and preventing adverse outcomes associated with them. Specialized nursing care is often needed for this population due to the complex needs, along with integrated interprofessional team-based care. Four in 10 Americans have two or more chronic diseases, and those diagnosed with multiple comorbidities are projected to increase.
Regenerative and restorative care: This sphere includes critical and trauma care, complex acute care, acute exacerbations of chronic disease, and care of unstable patients who are typically in acute care hospital settings (AACN, 2021). This sphere includes the acute management of illness, such as a stroke or mental health crisis, and progression through the rehabilitative phase. Nursing skills and management of these populations are resource-intensive and specialized.
Hospice and palliative care: The final sphere relates to competencies surrounding palliative care in advanced illness and hospice care at the end of life. All registered nurses provide generalist palliative care in compassionate and patient-centered care while managing pain and other symptoms associated with advanced, progressive illness. The End-of-Life Nursing Education Consortium has mapped its Competencies and Recommendations for Educating Nursing Students competencies to the new AACN Essentials to assist educators in this endeavor.
Reflection Questions
By the end of your practicum, make sure that you have answered each of these questions.
- Wellness and disease prevention: Reflect on the health promotion disease prevention interventions you witnessed in your practicum site, as it relates to the social determinants of health most prevalent in your community. What did you see? What does this time mean to you as a professional nurse in your role?
- Chronic disease management: Reflect on the integration of interprofessional team-based care as it relates to chronic disease management in your practicum site. What did you see? What does this time mean to you as a professional nurse in your role?
- Regenerative and restorative care: Reflect on the acute management of illnesses such as stroke, mental illness, and falls in your practicum site. What did you see? What does this time mean to you as a professional nurse in your role?
- Hospice and palliative care: Reflect on end-of-life nursing and advanced illness and hospice care in your practicum site. What did you see? What does this time mean to you as a professional nurse in your role?
Implement successful care coordination strategies using evidence-based practices, family-centered priorities, health policy provisions, and evaluation methods for quality improvement.
Reference
American Association of Colleges of Nursing. (2021). The essentials: Core competencies for professional nursing education. https://www.aacnnursing.org/Portals/0/PDFs/Essentials/Essentials-Executive-Summary.pdf
Completion Checklist
Competencies Measured
By successfully completing this assessment, you will demonstrate your proficiency in the following course competencies and scoring guide criteria:
- Competency 1: Create a patient centered strategy to achieve desired health outcomes.
- Design patient-centered health interventions and timelines for a selected healthcare problem.
- Describe priorities that a care coordinator would establish when discussing the plan with a patient and family members.
- Competency 2: Apply the code of ethics for nursing to care coordination decisions.
- Consider the ethical decisions in designing patient-centered health interventions for a selected healthcare problem, supporting ideas with the literature.
- Competency 3: Explain how health care policies affect the coordination of patient centered care.
- Identify relevant health policy implications for the coordination and continuum of care.
- Use the literature on evaluation as a guide to compare learning session content with best practices, including how to align teaching sessions to Healthy People 2030.
- Competency 5: Apply professional, scholarly communication strategies to lead patient-centered care.
- Apply APA formatting to in-text citations and references, exhibiting nearly flawless adherence to APA format.
- Organize content so ideas flow logically with smooth transitions; contains few errors in grammar/punctuation, word choice, and spelling.
- Complete any remaining practicum hours, for a total of 40 hours, approved by your preceptor. Submit practicum hour documentation to Capella Academic Portal.
Scoring Guide
Use the scoring guide to understand how your assessment will be evaluated.
Expand All
Criterion 1
Design patient-centered health interventions and timelines for a selected healthcare problem.
Distinguished
Designs patient-centered health interventions and timelines for a selected healthcare problem that includes community resources.
Proficient
Designs patient-centered health interventions and timelines for a selected healthcare problem.
Basic
Designs patient-centered health intervention for a selected healthcare problem.
Non Performance
Does not design patient-centered health interventions and timelines for a selected healthcare problem.
Criterion 2
Consider the ethical decisions in designing patient-centered health interventions for a selected healthcare problem, supporting ideas with the literature.
Distinguished
Considers the ethical decisions in designing patient-centered health interventions for a selected healthcare problem, including ethical questions that generate uncertainty about the decisions made. Ideas are supported by the literature.
Proficient
Considers the ethical decisions in designing patient-centered health interventions for a selected healthcare problem, supporting ideas with the literature.
Basic
Considers ethical decisions.
Non Performance
Does not consider the ethical decisions in designing patient-centered health interventions for a selected healthcare problem or support ideas with the literature.
Criterion 3
Identify relevant health policy implications for the coordination and continuum of care.
Distinguished
Identifies relevant health policy implications for the coordination and continuum of care, based on accurate interpretations of policy provisions and supporting evidence.
Proficient
Identifies relevant health policy implications for the coordination and continuum of care.
Basic
Identifies health policy implications that are inconsistent with the goals and objectives for the coordination and continuum of care.
Non Performance
Does not identify relevant health policy implications for the coordination and continuum of care.
Criterion 4
Describe priorities that a care coordinator would establish when discussing the plan with a patient and family members.
Distinguished
Describes priorities that a care coordinator would establish when discussing the plan with a patient and family members, including evidence to support ideas.
Proficient
Describes priorities that a care coordinator would establish when discussing the plan with a patient and family members.
Basic
Identifies priorities that a care coordinator would establish when discussing the plan with a patient and family members.
Non Performance
Does not describe priorities that a care coordinator would establish when discussing the plan with a patient and family members.
Criterion 5
Use the literature on evaluation as a guide to compare learning session content with best practices, including how to align teaching sessions to Healthy People 2030.
Distinguished
Uses the literature on evaluation as a guide to compare learning session content with best practices, including how to align teaching sessions to Healthy People 2030. Explains the need for changes to the plan.
Proficient
Uses the literature on evaluation as a guide to compare learning session content with best practices, including how to align teaching sessions to Healthy People 2030.
Basic
Discusses evaluation but does not use the literature as a guide to compare learning session content with best practices, or does not include how to align teaching sessions to Healthy People 2030.
Non Performance
Does not use the literature on evaluation as a guide to compare learning session content with best practices, and does not include how to align teaching sessions to Healthy People 2030.
Criterion 6
Apply APA formatting to in-text citations and references, exhibiting nearly flawless adherence to APA format.
Distinguished
Exhibits strict and flawless adherence to APA formatting of headings, in-text citations, and references. Correctly uses quotes and paraphrasing.
Proficient
Applies APA formatting to in-text citations and references, exhibiting nearly flawless adherence to APA format.
Basic
Applies APA formatting to in-text citations, headings and references incorrectly and/or inconsistently, detracting noticeably from the content. Inconsistently uses headings, quotes, and/or paraphrasing.
Non Performance
Does not apply APA formatting to headings, in-text citations, and references. Does not use quotes or paraphrase correctly.
Criterion 7
Organize content so ideas flow logically with smooth transitions; contains few errors in grammar/punctuation, word choice, and spelling.
Distinguished
Organizes content with a clear purpose. Content flows logically with smooth transitions using coherent paragraphs, correct grammar/punctuation, word choice, and free of spelling errors.
Proficient
Organizes content so ideas flow logically with smooth transitions; contains few errors in grammar/punctuation, word choice, and spelling.
Basic
Organizes content with some logical flow and smooth transitions. Contains errors in grammar/punctuation, word choice, and spelling.
Non Performance
Does not organize content for ideas. Lacks logical flow and smooth transitions.
Criterion 8
Complete any remaining practicum hours, for a total of 40 hours, approved by your preceptor. Submit practicum hour documentation to Capella Academic Portal.
Distinguished
Completes any remaining practicum hours, for a total of 40 hours, along with a detailed description of activities, approved by your preceptor to Capella Academic Portal.
Proficient
Completes any remaining practicum hours, for a total of 40 hours, approved by your preceptor. Submits practicum hour documentation to Capella Academic Portal.
Basic
Completes any remaining practicum hours, for a total of 40 hours, approved by your preceptor. Documents activities in Capella Academic Portal, but not detailed.
Non Performance
Total hours submitted does not equal 40 hours. Does not submit practicum hour documentation to Capella Academic Portal.
Four Spheres of Care Activity
Use at least 100 words and no more than 400 words for each of the four required journal entries in this activity. You do not need to include scholarly resources or a reference list. Your reflections should be your own original thoughts. Please do not include patient or clinic identifying information.
When you are finished with all four, select Save Entries and then Output Activity. Submit the resulting PDF to your assessment.
Wellness and Disease Prevention:
Reflect on the health promotion disease prevention interventions you witnessed in your practicum site, as it relates to the social determinants of health most prevalent in your community. What did you see? What does this time mean to you as a professional nurse in your role?
Respond with at least 100 words.
0/100 min words
Chronic Disease Management:
Reflect on the integration of interprofessional team-based care as it relates to chronic disease management in your practicum site this week. What did you see? What does this time mean to you as a professional nurse in your role?
Respond with at least 100 words.
0/100 min words
Regenerative and Restorative Care:
Reflect on the acute management of illnesses such as stroke, mental illness, and falls in your practicum site this week. What did you see? What does this time mean to you as a professional nurse in your role?
Respond with at least 100 words.
0/100 min words
Hospice and Palliative Care:
Reflect on end-of-life nursing and advanced illness and hospice care in your practicum site this week. What did you see? What does this time mean to you as a professional nurse in your role?
Respond with at least 100 words.
0/100 min words
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